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Old May 2 2014, 11:18 AM   #2184
mawra
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Join Date: Feb 2007
Location: CONCORD VA
Gender: F
Fan of: PERN
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Default Re: What is happening

Why does my family attract all the rear medical problems? Melissa got the MRI from Emmi back. She does not have Chiari Malformation like Seth or Tuberous sclerosis complex like Robin. Hers is completely different. She has a cyst pressing on a glad deep in the brain.

It can cause major behavior problems and sleep problems. I am not sure what else. There are only 3 Dr. experts in the world for this. One is in Texas, one in L.A and one in Australia. None anywhere near us. The Dr. has not told Melissa very much about it yet. From what was found on line there is a surgery for it, but since it is so deep into the brain it is very risky. Some people never have symptoms. With the behavior problems she is having she is not likely to be symptom free.
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